Partnership for Patients Summit: Final Traditional Conference Session #cinderblocks #HCKC

Partnership With Patients Summit

Final Traditional Conference Session 

4:00- 5:00 Olga Pierce from Pro Publica

Olga Pierce is a recent graduate of the Stabile Investigative Journalism Seminar at Columbia University, where she won a Horton Prize for health reporting. Before Columbia, she covered health policy for United Press International in Washington where, in addition to writing stories about Medicare Part D, uninsured Americans and AIDS vaccine, she appeared as a commentator on C-SPAN and went to Camp David as a White House pool reporter. Her stories have appeared in the Chicago TribuneNew York TimesHindustan TimesLincoln Journal-Star and other newspapers. Olga is fluent in Czech and has a bachelor???s in international economics from Georgetown University.

4:30-5:00 Lesa Mitchell from Kauffam Foundation Film Trailer 

Lesa Mitchell is vice president of Innovation and Networks at the Ewing Marion Kauffman Foundation. Her responsibilities include identification of programmatic and policy levers that can accelerate innovation and support networks enabling firm growth.

Lesa

Mitchell was instrumental in the founding of the Kauffman Innovation Network/iBridge Network, the Translational Medicine Conferences in the United States and Europe, and the National Academies-based University???Industry Partnership. She also is a leader in the replication of innovator-based commercialization and mentor programs across the United States.

Mitchell recently served on the board of Gazelle Growth in Denmark, and currently is chairman of the Kauffman FastTrac board. She is an advisory board member of the National Science Foundation i-Corp program and of Modern Meadow Inc. Prior to joining Kauffman, Mitchell spent twenty years of her career in global executive roles at Aventis and Quintiles, and she was an entrepreneur focused on the global management of electronic clinical trials. 

**** Please remember these are my PERSONAL notes from this session and done during the session so excuse the typos and remember these may be my thoughts and impressions!  AND This is a PANEL with some Power Houses so it will be organized by How and when they speak???

  • Olga Pierce – @olgapierce 
  • http://www.propublica.org/series/patient-safety   
  • FB: ProPublica Patient Harm Community
  • People have been told by hospitals can’t share THEIR hospital records with them because of HIPPA laws – right??? HIPPA protects you from your Own records!  *sigh* 
  • Compare dialysis facilites interactive piece on the site 
  • Nursing Home Inspect – taken reports and made them digital so they can be searched and read the inspection report 
  • Journalist Matchmaker and collected data to connect people who Have a store with journalists who want to interview someone 
  • Have Share Your Story Links 
  • Lesa Mitchell
    • Documentary that will be submitted to Sundance 
    • “Individuals can drive change”
    • “The answers are IN us”
  • Talking about research on rare diseases – the need to understand rare diseases more will give benefit to the “rest of us” 
  • Really amazing documentary !
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